OUR COMMUNITY

From Isolation to Connection

Elizabeth’s Hope

Elizabeth’s Hope was established as a way of Elizabeth’s family to bring meaning to Elizabeth Minter’s diagnosis. It’s funding is focused to support research on rare tumors like Gliomatosis Cerebri. Here at Elizabeth’s Hope, we are deeply appreciative of our supporters, and we want to keep all of you updated.

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The Joshua Bembo Project

The Joshua Bembo Project, Inc. is a non-profit organization created in memory of Joshua Bembo who lost his 15 month battle with Gliomatosis Cerebri on March 01, 2013. They are dedicated to providing hope to children diagnosed with rare and inoperable brain tumor such as the one that took Joshua’s life.

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Izas’ La Princesa Guisante

The association Izas, la princesa guisante (Izas, Princess Pea), has the solid objective of promoting research, encouraging tissue donation to forward this research, and raising awareness amongst the medical community, families, and society about this fatal children’s cancer. Click to learn more about us.

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Franck Un Rayon de Soleil

Created in 2010 by the family and friends of the young Franck, 14, died of a brain gliomatosis, the association is involved in favor of cancer research in children but also in supporting families affected by this disease. Our commitment is to donate 100% of donations collected to research,

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AYJ Fund

The mission of the AYJ Fund is to bring smiles to kids with cancer, to keep them connected to friends and school through technology, and to support the research of Gliomatosis Cerebri and other brain cancers to find the cures. The fund is dedicated in honor of the life of Anna Yan.

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Rudy Menon Foundation

The Rudy A Menon Foundation has been set up to help fund research on Gliomatosis Cerebri and other rare brain cancers. They are working with ICR, London, UK, where Dr. Chris Jones and his team are doing groundbreaking research. It was set up to honor the memory Rudy Menon who lost his battle with GC on his 26th birthday.

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Over the Moon

Over The Moon is a group of dedicated family and friends. They’ve come together to honor the memory of TJ, one of our kids touched by Gliomatosis Cerebri. There main goal is to help other childhood cancer families by bringing joy and hope to children fighting cancer and their families.

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Children’s Brain Tumor Family Foundation

The Children’s Brain Tumor Family Foundation is built by families who have been united by tragedy. Frustrated by a lack of funding for research for inoperable brain tumors, these families have formed a foundation to support the research at the Children’s Brain Tumor Project at Weill Cornell.

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Fe y Misericordia

Fe y Misericordia is a foundation inspired by the life of Patrick Bayly Mansano, a kid who had fought bravely against Gliomatosis Cerebri. Currently working on an agreement with Universidad Cayetano Heredia (UPCH), which has the best known Medicine Faculty in Peru, to implement the “Radiotherapy and Image diagnose Centre Patrick Bayly Marsano”.

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CONNECT WITH FAMILIES

The GC Connection is a network of people who have been touched by Gliomatosis Cerebri. It is a closed Facebook Group where families come together to share information on ourselves and our family members, including updates, struggles, treatment options, research and fundraising initiatives.

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PARTICIPATE IN THE SOLUTION

The Gliomatosis Cerebri Registry is a key part of the Children’s Brain Tumor Project at Weill Cornell Medicine Pediatric Neurosurgery. The registry will establish a central database of gliomatosis cerebri cases worldwide.

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